I remember…

February 18, 2019 at 1:00 am 4 comments

I remember standing in the elevator after C’s first neurology appointment  (with a doc so aged another doc acquaintance later said, “What? They still let that guy practice?”) and Husband saying to me, “How does it feel to know more than the doctor?”

I remember C crawling in bed with me in the mornings and saying, “Tummy hurts.” Every. Single. Day. For. Years. It was nearly 12 years before we found the problem behind that issue.

I remember C’s first day of preschool at three years old. He looked up at the Exit sign and said, “E. X. I. T. Exit.”  We took him home and wrote out the handful of words he used at that point and realized he could read every single one.

I remember C’s first throat culture, in the emergency room well after midnight when he spiked a fever we couldn’t get under control. I told the doctor I wasn’t sure how easy it would be to get one due to his sensory integration issues, to which she responded in her most condescending voice, “Who diagnosed him with THAT?” as if it was a completely made up thing. It took three staff members to hold him down.

I remember meeting the developmental pediatrician who diagnosed C with autism. Her first words to me, after hearing his screams and tantrums from down the hall, were, “You’re in for an interesting ride.”

I remember snippets like these. I suspect every parent does, but I wonder if parents of neuro-typical kids remember things in a different way. I can’t put my finger on what I would call a regular moment with C. Everything is so dramatic, so extraordinary, and of such significance. I look back and remember nothing average, nothing mundane, nothing banal. I’m sure those moments happened, but not frequently.

I don’t really know what to expect when C comes home, but I certainly hope for boring. Or at least more of it than we have experienced before now.

 

 

Entry filed under: autism. Tags: , , , , , , , .

What We Need Easy like Sunday morning

4 Comments Add your own

  • 1. Scott Baird  |  February 18, 2019 at 10:26 am

    Rest assured that those of us on your asdmommy list, while suffering in our helplessness, do care about you, C-, and your entire family. Scott

    Sent from my iPad

    >

    Reply
    • 2. asdmommy  |  February 18, 2019 at 4:58 pm

      💙💙💙💙

  • 3. Becky Carpenter  |  February 18, 2019 at 5:41 pm

    Oh, Darcy, my heart is – as it has always been, with you.

    Reply
    • 4. asdmommy  |  February 18, 2019 at 6:05 pm

      💙💙💙

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